Interviews with Conference Presenters and Participants - PAGE 2
Julie Beadle-Brown, PhD and Reader in Intellectual and Developmental Disabilities at the University of Kent's Tizard Centre, discusses the DISCIT project which examined policy and the experience of people with disabilities across 9 European Union countries.
Padraic Fleming, a Population Health and Health Services Researcher at Maynooth University, discusses his research findings on the experiences, barriers and facilitators associated with implementing four individualized funding pilot initiatives in Ireland.
Eilionóir Flynn, Deputy Director for the Centre  for Disability Law and Policy at the National University of Ireland in Galway talks about a research report that explores some of the elements that are needed to support self-directed living in her country.
Maggie Vilvang, Principal with the Community Living Innovation Venture, discusses a process known as guided reflection that enables researchers to discover deep policy and practice patterns that impact the ability to achieve public policy objectives.
Maggie Vilvang, Principal with the Community Living Innovation Venture, discusses 6 key policy and practice reasons that individualized funding uptake has not been as great in British Columbia as was anticipated when Community Living BC was created in 2005.
Margaret Ward, a parent from Queensland, Australia, describes a seven step process that can be used for self directing needed supports and services. This process emerged from her research as a Research Fellow at Griffith University.
Margaret Ward, a parent from Queensland, Australia and Research Fellow at Griffith University, reflects on the lessons she learned in helping her daughter, Mena, to direct her personal supports and services.
Dr. William Cowie, Chief of the Every Canadian Counts Coalition, discusses how this grass roots movement is advancing the creation of a publicly funded national disability insurance program for ALL Canadians living with long-term, chronic disabilities. 
Don Gallant, CACL's National Director of Ready, Willing and Able, a program to build an inclusive national work force, talks about the extent to which funded supports and services enable people with disabilities to live as full citizens in Canada.
Michael Kendrick, an international disability policy consultant, reflects on two major system change initiatives that have garnered recent attention around the world – Community Living British Columbia in Canada, and the National Disability Insurance Scheme in Australia.
Michael Kendrick, an international disability policy consultant, talks about different strategies that can be used to support system change efforts so they are more likely to achieve stated policy outcomes and avoid unintended  or consequences.
Ross Chilton, Executive Director with the Community Living Society in New Westminster, British Columbia, Canada, talks about some of the factors that impact the process of system change in the disability field.
System Change and Practice Issues
Self Direction
Research
Leighton Jay PhD, a consultant from Western Australia who also has a son with a disability, discusses complex systems theory and what it can teach us about how we approach changing organizations and systems.
Leighton Jay PhD, a consultant and parent from Western Australia, shares his hopes and fears for the National Disability Insurance Scheme which promises Australians with a disability greater control over their lives than they have enjoyed in the past.
Lesley Chenoweth PhD and Professor of Social Work at Griffith University in Australia discusses some of the different factors that both enable and impede the ability of families to direct their own supports.
Carol Blessing, faculty at the K. Lisa Yang and Hock E. Tan Institute on Employment and Disability at Cornell University discusses some of the skills that are needed to support people with disabilities to achieve and enjoy active citizenship.
Samantha Jenkinson, Executive Director with People with Disabilities Western Australia, discusses the campaign to garner support from all Australians for the National Disability Insurance Scheme.
Valerie Bradley, President, Human Services Research Institute, talks about the National Core Indicator data set being used by human services to enhance self-determination for people with disabilities.
Simon Duffy PhD, Director of the Centre for Welfare Reform in the United Kingdom, talks about the four stages of innovation and illustrates how the innovation cycles is playing out with individualized funding.
Sue Swenson, Deputy Assistant Secretary, Special Education and Rehabilitative Services, US Department of Education, reflects on her experience in government to outline some of the elements that make a bureaucracy effective.
Sue Swenson, Deputy Assistant Secretary, Special Education and Rehabilitative Services, US Department of Education remembers her son Charlie and the contribution he made to his community by making it more welcoming and inclusive.
Eddie Bartnik, international disability policy consultant and strategic advisor to the National Disability Insurance Scheme, sets out ways the NDIS data set will support system change over time.
Eddie Bartnik, international disability policy consultant and Australia’s first Mental Health Commissioner, reflects on the status of self-determination, personalization and individualized funding in the mental health movement.
Dr. Robert Schalock, Professor Emeritus at Hastings College and international authority on quality of life measurement, argues human services must be aligned at the individual, organizational and system level in order to enable people with disabilities to achieve their personal outcomes.
Ruth Bartlett PhD Associate Professor and Program Lead, Centre for Innovation and Leadership in Health Sciences, University of Southampton, talks about the emerging citizenship discourse in health care in the United Kingdom.
In this October 15, 2015 interview National Disability Insurance Scheme Chair Bruce Bonyhady discusses how the NDIS is an enabling body that augments the caring roles played by families and communities.
In this October 15, 2015 interview National Disability Insurance Scheme Chair Bruce Bonyhady outlines key design features that will help the NDIS achieve its mandate, remain sustainable and retain the confidence of Australia’s federal government and public.
Linda Perry, Executive Director with the Vela Microboard Association, outlines some of the factors that negatively impact system change efforts based on her work in Canada and other western jurisdictions.
Steve Dowson discusses the Vancouver Benchmarks which are intended to help governments understand the actions they must take to enable people with disabilities and seniors who use human services to achieve full citizenship.
Carol Blessing, faculty at the K. Lisa Yang and Hock E. Tan Institute on Employment and Disability at Cornell University discusses the “Integrity Gap” - the space between what people intend to do and what they actually do with and on behalf of people with a disability.
Simon Duffy PhD, Director of the Centre for Welfare Reform in the United Kingdom, discusses human service system design principles needed to support full citizenship.
Simon Duffy, PhD and Director of the Centre for Welfare Reform in the United Kingdom, suggests that the next stage in advancing citizenship for people with disabilities requires global collaboration.
Eddie Bartnik, international disability policy consultant and strategic advisor to the National Disability Insurance Scheme, outlines different ways the NDIS is safeguarding its vision of supporting full citizenship for people with a disability.
In this October 15, 2015 interview National Disability Insurance Scheme Chair Bruce Bonyhady outlines steps being taken to help grow a demand-based market of supports and services to respond to the needs of Australians with disabilities.
Sue Swenson, Deputy Assistant Secretary, Special Education and Rehabilitative Services, US Department of Education shares her ideas about how the Internet can be used to advance citizenship for people with disabilities.
Sue Swenson, Deputy Assistant Secretary, Special Education and Rehabilitative Services, US Department of Education reminds us that truly responsive systems require more than individualized funding, independent planning, supported decision making and shared governance.
In this October 15, 2015 interview National Disability Insurance Scheme Chair Bruce Bonyhady talks about how learnings from the trial sites have shaped the development of the NDIS.
Julie Beadle-Brown, PhD and a Reader in Intellectual and Developmental Disabilities at the University of Kent's Tizard Centre, discusses the critical role support staff play in enabling people with disabilities to achieve active citizenship.
John Agosta, PhD and VP of the Human Services Research Institute, outlines challenges facing policy makers seeking to transform the way in which supports and services are delivered to people living with a disability.
Committed to
transforming human services so people with intellectual, physical and psycho-social disabilities and seniors can live as
FULL citizens.
Rights Based Social Policy